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The Golden Life

The Golden Life I knew something was wrong.  I could feel it in my gut.  When you spend 10 years of your life with another living being, you develop a style of communication that is special to the both of you.. it creates a bond and an unbreakable connection between the two of you. This… Continue reading The Golden Life

Mindful Mondays

Mindful Mondays: How to Sleep

Mindful Mondays: How to Sleep Staring at the ceiling through the darkness of my room.  Although the clock is silent, I can  still feel the restless minutes pass by as I struggle to fall asleep. My covers hurt. My covers are hot. Why are the covers so heavy? Why does this bed feel lumpy tonight?… Continue reading Mindful Mondays: How to Sleep

CRPS Chronicles

Meet Genevieve. The CRPS Chronicles

Meet Genevieve. The CRPS Chronicles Genevieve Age: 33, Living in Virginia. Genevieve is a blogger/social media manager who lives in central Virginia with her husband and two dogs. I met Genevieve in October of 2015 during one of the scariest times of my CRPS.  We had a friend of a friend of a friend connection… Continue reading Meet Genevieve. The CRPS Chronicles

CRPS/RSD

#Crushcrps 7 day challenge 

#crushcrps  7 day Instagram Challenge! A few weeks ago I came up with the idea of a challenge for those of us suffering from CRPS.  I wanted to change the narrative. I wanted to talk more about positive movement instead of overwhelming high levels of pain.  I wanted to post pictures of moving through the… Continue reading #Crushcrps 7 day challenge 

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Mindful Mondays: Learning to Pause with Chronic Illness & Pain

Mindful Mondays: Learning to Pause with Chronic Illness & Pain The past two weeks have been really difficult for me.  Not only is the insurance situation that I am in one of the most difficult but I am also in pain, which just adds more weight. to the urgency of the issue.  So now I… Continue reading Mindful Mondays: Learning to Pause with Chronic Illness & Pain

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Physical Therapy & Complex Regional Pain Syndrome (CRPS): a guide for success

Physical Therapy & Complex Regional Pain Syndrome (CRPS): a guide for success I have wanted to write about this topic for a while.  This summer I found myself back in a wheelchair for the 2nd time in my life and this time, my CRPS flare had gotten so bad that I was out of work… Continue reading Physical Therapy & Complex Regional Pain Syndrome (CRPS): a guide for success

Coping Tools · CRPS/RSD · Dealing with Pain · Mindful Mondays

Mindful Mondays: Learning Acceptance in Chronic Pain

Mindful Monday: Learning Acceptance in Chronic Pain Lately I have been listening and reading a lot about acceptance. I’ve been trying to relate it to my diagnosis and the chronic pain that I experience everyday.  This weekend I dove a little deeper into the topic of acceptance, as I just couldn’t wrap my head around… Continue reading Mindful Mondays: Learning Acceptance in Chronic Pain

Coping Tools · Mindful Mondays

Mindful Mondays: My 7 Favorite Mindfulness Quotes

Mindful Mondays: My 7 Favorite Mindfulness Quotes I don’t know about you, but I love a good quote.  For me writing is magic and words come together to create a new reality.  A good quote can sometimes make the impossible happen. We see them EVERYWHERE!  They are on clothing, on the bumpers of cars, marketing… Continue reading Mindful Mondays: My 7 Favorite Mindfulness Quotes

Chronic Illness · Coping Tools · CRPS/RSD · Dealing with Pain · Writings

I Am A Bad Patient

I Am A Bad Patient. The Fear of Advocating I am 36 years old. A Licensed Clinical Social Worker. An advocate. A friend who loves laughter. A writer. A traveler. An animal lover. A sister. A daughter. A fierce woman. An Educator. I am also a patient with chronic excruciating pain. I live with a… Continue reading I Am A Bad Patient

Chronic Illness · Coping Tools · Mindful Mondays

Mindful Mondays: The Painful Beauty of Impermanence

Mindful Mondays: The Painful Beauty of Impermanence The scariest thing about living with a progressive neurological disease isn’t the pain that I am in today.  It is the pain that I fear I will be in tomorrow or the next day.  Worrying about the future goes hand and hand with chronic illness.  Will I be well… Continue reading Mindful Mondays: The Painful Beauty of Impermanence